DRF co-founders honoured by Prime Minster’s Office

The Duchenne Research Fund’s co-founders Kerry and Doron Rosenfeld are honoured to have received the Prime Minister’s Points of Light award. The initiative recognises “outstanding individual volunteers – people who are making a change in their...

Lauren skydives in memory of brother Charlie

Thank you to our fundariser Lauren Halsey who did a skydive in memory of her brother, who had Duchenne. We’re so grateful for the funds she raised, which will go towards our vital projects. Thank you! Click here to see our fundraising...
DRF funds CRISPR research to correct Duchenne mutations

DRF funds CRISPR research to correct Duchenne mutations

The Duchenne Research Fund has awarded a £200,000 grant to the team at the Hospital for Sick Children in Toronto, Canada (‘Sick Kids’), who are working on using CRISPR/Cas9 technology to correct duplication mutations for Duchenne. Sick Kids’ incoming President and CEO...
#TeamDRF raises £30,000 in Prudential cycle ride

#TeamDRF raises £30,000 in Prudential cycle ride

Congratulations to the #TeamDRF cyclists who took on the Prudential RideLondon-Surrey on Sunday 29 July in treacherous conditions and raised more than £30,000 to help combat Duchenne. The annual ride is one of Europe’s biggest sporting events, with more than 25,000...

Gene therapy for Duchenne: latest news

Five years ago we identified gene therapy as a viable treatment for Duchenne. Today we are reflecting on the exciting and inspiring events of the past week in the gene therapy arena which are now bringing hope and cautious optimism to the Duchenne community. We have...

Solid Biosciences clear to resume IGNITE DMD

Message from Solid Biosciences: “We’re pleased to share with you that the FDA has lifted the clinical hold on IGNITE DMD, our clinical trial investigating SGT-001 as a potential treatment for Duchenne muscular dystrophy (DMD). SGT-001 is a microdystrophin gene...
DRF funds Newcastle refurbishment

DRF funds Newcastle refurbishment

On Wednesday 27 September 2017, the newly refurbished paediatric area in the Clinical Research Facility at Newcastle Royal Victoria Infirmary was officially opened by Professor Mark Walker and Dr Michela Guglieri. The refurbishment was possible thanks to the generous...
Duchenne Hub day tackles clinical trial access

Duchenne Hub day tackles clinical trial access

The Duchenne Research Fund was delighted to participate in the Duchenne Hub information day held on 18 September 2017 at Alder Hey Children’s Hospital in Liverpool. The event was hosted by Duchenne UK, organised in conjunction with Hub manager Emma Heslop and the...