On Rare Disease Day, watch Eli Crossley, son of our friend and Duchenne UK co-founder Emily, as he talks about – and demonstrates – the amazing technological developments that are being trialled for children with Duchenne muscular dystrophy. The ‘smart suit’ aims to help children who are losing upper body function in still continuing to use their arms.

As a charity we have been proud to partner with Duchenne UK on many other projects and it is wonderful to see the incredible progress that they are making for everyone in the Duchenne community and research arena.

Learn more about our research projects.