Dedicated specialist support for Duchenne muscular dystrophy (DMD) patients and families’ mental health and wellbeing will soon be more readily available, as part of the DMD Care UK project. DMD Care UK is a nationwide initiative aiming to ensure that every person...
The Duchenne Research Fund is delighted to announce that we are awarding a £640,000 grant to fund vital psychosocial care and research as part of Duchenne UK’s DMD Care UK programme. We are so pleased to partner with Duchenne UK on this important project. The...
Congratulations to #TeamDRF’s Adam, Benji, Charles and Yossi who completed the London Marathon on Sunday 3rd October 2021, raising more than £28,000 for the Duchenne Research Fund. The annual event is the largest marathon in the UK, attracting around 40,000...
We are pleased to share that we have awarded a grant of £35,000 to Great Ormond Street Hospital to establish a dedicated clinic for children who are non-ambulant (no longer able to walk). The grant supports the post of Senior Physiotherapist Nicola Burnett (pictured)...
We are pleased to announce that the Duchenne Research Fund has places available for the 2021 Virgin Money London Marathon, which is due to take place on Sunday 3rd October. Whether you’re a seasoned runner or a first-time marathoner, we welcome all supporters...
The Duchenne Research Fund is pleased to share that the KineDMD study has been extended into 2021/22. KineDMD is Dr Aldo Faisal’s ground-breaking artificial intelligence study at Imperial College London, in collaboration with Great Ormond Street Hospital, which...
The Duchenne Research Fund recently shared the news that we are supporting the KineDMD study – Dr Aldo Faisal’s ground-breaking artificial intelligence study at Imperial College London, in collaboration with Great Ormond Street Hospital, which aims to...
The Duchenne Research Fund was delighted to participate in the Duchenne Hub information day held on 18 September 2017 at Alder Hey Children’s Hospital in Liverpool. The event was hosted by Duchenne UK, organised in conjunction with Hub manager Emma Heslop and the...
On Sunday 12 July, Ilana, Sara, Tanya, Harris, Suzanne, Corinne, Michal and Duchenne Research Fund founder Kerry (aka the Running Club) completed the Vitality British 10km London Run. The group is for individuals who had never previously felt confident about the idea...
Last month our avid fundraiser David Stone ran the Virgin Mini London Marathon – the last three miles of the marathon. He ran in the Under 13s age group and finished his three miles in 16 minutes and 12 seconds, making him the winning runner from the London...
