DRF awards £640,000 for vital psychosocial project

The Duchenne Research Fund is delighted to announce that we are awarding a £640,000 grant to fund vital psychosocial care and research as part of Duchenne UK’s DMD Care UK programme. We are so pleased to partner with Duchenne UK on this important project. The...

DRF funds Duchenne clinic at Great Ormond Street

We are pleased to share that we have awarded a grant of £35,000 to Great Ormond Street Hospital to establish a dedicated clinic for children who are non-ambulant (no longer able to walk). The grant supports the post of Senior Physiotherapist Nicola Burnett (pictured)...

Solid announces collaboration with Ultragenyx

Ultragenyx Pharmaceutical and Solid Biosciences have announced a strategic collaboration and license agreement to focus on the development and commercialisation of new gene therapies for Duchenne. The collaboration brings together Solid’s expertise in muscle biology...

Two-year Vamorolone study completed

Santhera Pharmaceuticals has announced that partner ReveraGen Biopharma has completed a long-term, open-label extension study of 24 months duration with Vamorolone in patients with Duchenne muscular dystrophy. Including 6 months treatment in the preceding study,...

DRF-funded Imperial College AI study extended

The Duchenne Research Fund is pleased to share that the KineDMD study has been extended into 2021/22. KineDMD is Dr Aldo Faisal’s ground-breaking artificial intelligence study at Imperial College London, in collaboration with Great Ormond Street Hospital, which...

Martyn and Jessica trek Snowdonia to raise funds for DRF

Congratulations to Jessica and Martyn Jacobs who raised more than £3,300 through their Snowdonia trek to make a difference for all boys with Duchenne. We are so grateful for your support and look forward to putting the funds to great use. Click here to see our...

Sam and Avi run marathon for DRF

Thank you to Sam Baum and Avi Mocton for running the Jerusalem Marathon on Friday 15th March, raising money for the Duchenne Research Fund. A special thank you too, to Alex Klinger who unfortunately had to pull out due to injury but cheered on from the sidelines....

Lauren skydives in memory of brother Charlie

Thank you to our fundariser Lauren Halsey who did a skydive in memory of her brother, who had Duchenne. We’re so grateful for the funds she raised, which will go towards our vital projects. Thank you! Click here to see our fundraising...