Two-year Vamorolone study completed

Santhera Pharmaceuticals has announced that partner ReveraGen Biopharma has completed a long-term, open-label extension study of 24 months duration with Vamorolone in patients with Duchenne muscular dystrophy. Including 6 months treatment in the preceding study,...

Update on Ignite DMD from Solid Biosciences

Solid Biosciences has issued an update on IGNITE DMD, the Phase I/II clinical study with its microdystrophin gene therapy, SGT-001. The most recent child dosed in the study has experienced a serious adverse event (SAE), and thankfully, he is now improving. He is being...

DRF-funded Imperial College AI study extended

The Duchenne Research Fund is pleased to share that the KineDMD study has been extended into 2021/22. KineDMD is Dr Aldo Faisal’s ground-breaking artificial intelligence study at Imperial College London, in collaboration with Great Ormond Street Hospital, which...
Cyclists take on Prudential ride to raise funds for DRF

Cyclists take on Prudential ride to raise funds for DRF

Congratulations to the #TeamDRF cyclists who once again took on the Prudential RideLondon-Surrey, and raised more than £5,000 to help combat Duchenne. The annual ride is one of Europe’s biggest sporting events, with more than 25,000 cyclists setting off from the...

Martyn and Jessica trek Snowdonia to raise funds for DRF

Congratulations to Jessica and Martyn Jacobs who raised more than £3,300 through their Snowdonia trek to make a difference for all boys with Duchenne. We are so grateful for your support and look forward to putting the funds to great use. Click here to see our...

Sam and Avi run marathon for DRF

Thank you to Sam Baum and Avi Mocton for running the Jerusalem Marathon on Friday 15th March, raising money for the Duchenne Research Fund. A special thank you too, to Alex Klinger who unfortunately had to pull out due to injury but cheered on from the sidelines....

DRF co-founders honoured by Prime Minster’s Office

The Duchenne Research Fund’s co-founders Kerry and Doron Rosenfeld are honoured to have received the Prime Minister’s Points of Light award. The initiative recognises “outstanding individual volunteers – people who are making a change in their...