We are delighted to announce that Duchenne Research Fund has awarded £40,000 to the newly launched DMD Care UK, partnering with the project’s founders Duchenne UK and Joining Jack. Together our three charities will invest £130,000 in the nationwide initiative that aims to ensure the best care for everyone living with Duchenne in the UK.
DMD Care UK was launched in October 2020 by Duchenne UK and Joining Jack together with Dr Michela Guglieri and Cathy Turner from Newcastle University. Leading Duchenne muscular dystrophy experts in the UK will collaborate with the Duchenne community to review current Standards of Care and agree and publish recommendations for every area of care that can and should be delivered within the NHS.
As well as being a funding partner, we will also participate in the working groups that form part of the initiative.
Watch the video below to learn more about this vital initiative. Please note, the roundtable featured took place before the pandemic: