Gavriel Rosenfeld talks to Dr Ronni Cohn about living with Duchenne

Gavriel Rosenfeld talks to Dr Ronni Cohn about living with Duchenne

On Wednesday 17th March the Duchenne Research Fund hosted a virtual evening to share updates with supporters about research funded by the charity. Our co-founders Kerry & Doron Rosenfeld welcomed more than 200 viewers from across five continents who came together...

DRF grants £40,000 to DMD Care UK project

We are delighted to announce that Duchenne Research Fund has awarded £40,000 to the newly launched DMD Care UK, partnering with the project’s founders Duchenne UK and Joining Jack. Together our three charities will invest £130,000 in the nationwide initiative...

ReveraGen receives $3.3m NIH grant for Vamorolone

ReveraGen BioPharma has received a $3.3 million grant from the NIH – the US National Institutes of Health – for their ongoing work on the steroid alternative treatment Vamorolone for Duchenne muscular dystrophy. The NIH Commercialization Readiness Pilot...

Solid announces collaboration with Ultragenyx

Ultragenyx Pharmaceutical and Solid Biosciences have announced a strategic collaboration and license agreement to focus on the development and commercialisation of new gene therapies for Duchenne. The collaboration brings together Solid’s expertise in muscle biology...

Update on Ignite DMD from Solid Biosciences

Solid Biosciences has issued an update on IGNITE DMD, the Phase I/II clinical study with its microdystrophin gene therapy, SGT-001. The most recent child dosed in the study has experienced a serious adverse event (SAE), and thankfully, he is now improving. He is being...
DRF-funded research featured on ITV’s Little Heroes

DRF-funded research featured on ITV’s Little Heroes

We are so proud that the family of our founders, Kerry and Doron Rosenfeld, starred in the first episode of season 2 of Paul O’Grady’s Little Heroes on ITV this week, highlighting the ground-breaking activity monitoring study that the Duchenne Research...
DRF funds CRISPR research to correct Duchenne mutations

DRF funds CRISPR research to correct Duchenne mutations

The Duchenne Research Fund has awarded a £200,000 grant to the team at the Hospital for Sick Children in Toronto, Canada (‘Sick Kids’), who are working on using CRISPR/Cas9 technology to correct duplication mutations for Duchenne. Sick Kids’ incoming President and CEO...