DRF Patron Evening

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Kerry & Doron

Recent news

Catch up on the latest developments in the projects we fund.

Solid data shows improved motor and lung function

We are pleased to share Solid Biosciences' latest update on the IGNITE DMD gene therapy clinical trial. Data after two years suggests that patients' motor function and lung function are improved compared to the declines that would be expected without treatment. The...

Emergency app launched for Duchenne

An ‘In Case of Emergency’ app has been launched for Duchenne patients and their families, as part of the DMD Care UK project …

Our mission

We aim to stop Duchenne muscular dystrophy being a death sentence for hundreds of thousands of boys worldwide.

Our impact

We are helping turn the hope of treatments into reality. Critical supportive drugs are in clinical trial thanks to our funds.

Your help

In the last 3 years we have given more than £1.5m to ground-breaking research projects.
And there is still work to do.