DRF Patron Evening
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Recent news
Catch up on the latest developments in the projects we fund.
DMD Hub launches Central Recruitment Pilot Project
The DMD Hub is launching the Central Recritment Pilot Project, aiming to create a database of families interested in take part in clinical trials …
Solid data shows improved motor and lung function
We are pleased to share Solid Biosciences' latest update on the IGNITE DMD gene therapy clinical trial. Data after two years suggests that patients' motor function and lung function are improved compared to the declines that would be expected without treatment. The...
Emergency app launched for Duchenne
An ‘In Case of Emergency’ app has been launched for Duchenne patients and their families, as part of the DMD Care UK project …
Our mission
We aim to stop Duchenne muscular dystrophy being a death sentence for hundreds of thousands of boys worldwide.
Our impact
We are helping turn the hope of treatments into reality. Critical supportive drugs are in clinical trial thanks to our funds.
Your help
In the last 3 years we have given more than £1.5m to ground-breaking research projects.
And there is still work to do.